So I guess we move on

We got an “official” answer from the Developmental Pediatrician. Really, the diagnosis won’t change any of his current therapies or prognosis much so we are still on the right path. My husband and I opted not to share the actual diagnosis on this blog. We don’t want to jeopardize any future therapies or treatments, and really, it’s my sons story to tell. I will be sharing different therapies that work for us in relation to his dyspraxia, speech apraxia and sensory stuff though, since that is still the root of the issue, so watch for those!

First step is transitioning from the Early Interventions therapies into a preschool setting. My Lord I’m nervous! I’d love to just keep him here at home with me all day every day. That probably won’t help him with peers later in life though. Booooooo. We have a meeting in March to go over what school we are “assigned” to and to decide if that’s really where we want him to go. We shall see. I’ve already got a page full of questions for them.

One thing that I’ve also decided to do is try to establish more of a “routine” for Chewy. Our days are so crazy with 3 boys, therapies, school runs, karate lessons and Chess clubs, that it’s rare we have a day I can map out ahead of time and even more rare we can adhere to a proper routine. I’m taking this in steps. For this week I’m establishing a bedtime routine. Dinner, bath, stories, snuggles and then bed. 1 hour, start to finish. We’ll see how I can keep this up when our dinner time changes every night, but at least the bath, stories, snuggles part should be consistent. *side note, just my kid getting a bath more than once a week would be a small miracle up in here!*

Do you have a set routine for your kids? Does it change based on the day, but keeping the weeks the same? Has it helped your son/daughter? I need all the tips I can get!

Emily

Fueled by coffee and wine. Wife to a doc, mom to three boys (one with Autism), a puppy and a tortoise. I knit, I get crafty, I tweet.

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Comments

  1. says

    You may already have a preschool identified. However, consider Children’s Outreach Project! It offers speech and occupational therapy in an integrated preschool.

  2. says

    My son is diagnosed with autism and because of all his sensory issues, he’s very anxious. A routine and making home his base has really paid off. He was dx’ed at 3 1/2 and is now 6. What worked for us? Having one caregiver (yay, me!) instead of many; taking him out of school to allow him to calm and regulate. We definitely do have a set routine based around eating and bedtime. It has been especially helpful in reducing his anxiety.

    ((hugs)) and wishing you the best.

  3. Gayatri says

    We do have a routine for everything but meals. We eat when we are hungry. Try to get weekend meals together. It helps a lot, even when we travel…… Getting some physical activity helps to keep the routine. When my daughter does Karate or rides her bike or walks with me, it is easier to get her to go to bed on time. When we just watch TV ( especially when the weather does not co operate), it is very difficult for her to be happy to go to bed.

  4. says

    Routines are very helpful at our house. For all of us. My husband wondered why I was so particular about our nightly quiet time routine with my big kids until we had a child together. Now he sees how helpful it is to get him settled in once the sun goes down. Good luck!

  5. Frelle says

    will be thinking of you as you set up and try to adhere to those routines, I totally understand the undertaking in that!

  6. Hethyr says

    I learned early on that K needed a routine, it helped his sensory issues. I know it’s a pita, but without it our life was much more difficult. I love the suggestion above of the master schedule. Huge hugs and I hope setting a routine isn’t as challenging for you as you fear!

  7. Sara @Doodle741 says

    We couldn’t live without a routine – but I trive on it – that’s why … GOOD LUCK!! I am here if you want to talk! ((HUG))

  8. kristy says

    After working with children on the autism spectrum and children with other developmental delays for 12 years, and now being a mom of an active, strong-willed child; routines will make for a more peaceful life for the entire family.

    Make a master schedule and fill it in with the things that are constant and fixed times that rarely change (therapy appointments, school, church, etc). Then you can take a look at the things that you need to do on a daily basis (meals, walking the dog, bath, etc.) It is best to try very hard to make these type of activities consistent as far as time goes. At your child’s age, times on your schedule aren’t that important, and as long as you are teaching a sequence of events that he can predict, he’ll be less anxious or uncertain what you expect from him.

    So once you have the activities that are pretty constant on your master schedule, you can fill in the things that are happening in the current week (haircuts, trips to the zoo, etc). If you have a pretty consistent routine set (from the paragraph above) it is easier to judge the best times of day to attempt these more challenging/less predictable activities.

    Routines aren’t as necessary for the average “typical” child, but even with a typical child, it is somewhat calming to know that there are set expectations. I’d be happy to help you if any of this sounds interesting or helpful.

  9. says

    I’m really the wrong person to ask about routines. When I had just 1 kid routines were easy. When I had 2 they became a little more challenging. Now that I have 4, I ask… what routine? And I’m horrible at getting dinner by a decent hour. The winter months aren’t so bad because no one plays any winter sports but Spring, Summer and Fall could be a challenge this next year. I will say that I have a better day time routine than I do evening routine and when the daytime one gets messed up, I turn into the mommy from HE**.

  10. RevKim says

    A routine can be followed no matter what time, so getting Chewie doing the same things in a row will help a lot. We started when our littlies were babies, and bedtime is a breeze. Bath (if it’s bath night) followed by lotion & brushing teeth, pj’s, into bed, story (one story!), kisses, and lights out. But the time the routine happens varies, depending on what kind of day we’ve had lol! And piling both kids in the bath helps to make sure they get more than one a week ;).
    As for preschool, the boychild has made such progress attending school, and the special help he gets is working really well. From fall to winter he went from a 5 to 19!

  11. says

    We love our routines around here! Kids have a bedtime routine and the kids take turns going to bed early so that they get a little extra time with their Dad. It’s made all the difference!

    Good Luck!

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